Symptom Paper

If fly paper had a cousin called "Symptom Paper" I'd be it. Really. In order to make my disorganized body look more organized, I've made a list of symptoms to rattle off at my many upcoming doctor appointments and over the phone to overworked nurses.

1. Itching, particularly when lying down and on back of neck and sides. Could be the liver expanding and stretching the skin. Still have to try "liver cream" a concoction made up by the doctors at UNMC.

2. Enlarged liver and liver pain.

3. Shortness of breath even with all my breathing treatments. I saw my Pulmonologist today and we're doing a sleep apnea test, a heart ultrasound and trying a new drug.

4. Low appetite

5. Dizzy

6. Confusion

7. Sleeping a lot, though still suffering from some insomnia because of discomfort, pain and lack of breath.

8. Body temp is cold and having occasional chills.

9. Stomach cramps and nausea. Blood....

10. Increased physical anxiety and RLS probably linked to the depolupron shot I had yesterday.

11. Heart palpitations (even when I haven't had albuterol)


There's a possibility of a fluid collection near my liver so I'll get a CAT scan to see if one exists and if it needs to be drained.

Anyway, yeah, that's where things are. More tests and whatnot will give us more info. Mirarculously (I say with sarcasm) my MELD score has gone down.